Katie's Diary

99 Balloons

6th February 2015

ONE brave baby boy touched the hearts of many with his inspiring fight against an unforgivable condition.    


Eliot Mooney didn’t live, long but his parents, Matt and Ginny captured his 99-day story on film to share and relive the memories of his fight against a life-limiting disease.


The young couple found out two months before baby Eliot was born, that he had Edwards Syndrome which causes faulty information to be placed into every cell of the body. Babies born with Edwards Syndrome have a very low rate of survival, as it causes heart abnormalities, kidney malformations, and other internal organ disorders.


Doctors told Matt and Ginny that their baby probably wouldn’t survive birth.


But the Mooneys believed that God gave them and their baby a beautiful 99 days together. In that short time, the family crammed in a lifetime’s worth of love. Their memories included Eliot’s first feed, watching his hair grow and celebrating daily birthdays.


At his funeral, 99 balloons were released in his memory; but, it also ignited a passion with the couple to help support children with special needs and their families.  The Mooneys themselves received a lot of help   and assistance from others that enabled them to better care for Eliot, which is why it inspired their ambition.


Matt and Ginny set about to fulfill this vision by creating the non-profit 99 Balloons in 2007. The charity serves as an umbrella organization, helping others both locally and globally.


99 balloons mirrors ubu’s philosophy and work.  Many of the people we serve have made their own balloon of happy memories through a number of different ways. For example, some have achieved sporting goals; some have learnt new hobbies and skills, whilst others have overcome significant barriers to volunteer for their chosen charitable organisations. These balloons increase and gather, marking the precious moments in every life.


Everyone may face adversity of some level, but like the Mooneys we can work together to overcome that and celebrate.  If you have a similar experience of creating happy memories, let us know.  Share your thoughts on twitter: @ubusupport



Don’t forget to follow ubu on Twitter: @ubusupport and on Linkedin: ubu Health and Social Care.

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 I decide what matters to me. ubu help and teach me to make my future happen 

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